'We're still measuring a significant inequality here and finding other clues that ableist biases and provider attitudes are contributing,' says Ohio transplant surgeon Austin Schenk.

'Her value is not tied to what she can do or reach or check off. Her value is who she is.'

A father balances sharing 'the difficulty of parenting a medically complex, disabled child... with enough of the joy that nobody mistakes Bree for a burden on us.'

As a neurodivergent person, 'I always seem to be at a loss when dealing with the social subtleties and codes that people are supposed to know.'

Self-care is not a one-off task, Anchel Krishna writes. Parent wellbeing can be found in the regular rhythms of life.