Resource Centre

Preparing for Adult Life: Resources & Links

Journal Articles

• Kieckhefer, G. & Trahms, C. (2000). Supporting Development of Children with Chronic Conditions: From Compliance Toward Shared Management.  Pediatric Nursing, 26(4), 354 - 381.
• King, G.A., Baldwin, P.J., Currie, M., & Evans, J. (2005). Planning successful transitions from school to adult roles for youth with disabilities. Children's Health Care, 34(3), 193-216.
• Reiss, J. & Gibson, R. (2002). Health Care Transitions: Destinations Unknown.  Pediatrics, 110(6), 1307 – 1314.
• Young, N.L., McCormick, A., Mills, W., Boydell, K., Law, M., Wedge, J., Fehlings, D., Mukherjee, S., Rumney, P., & Williams, J.I. (2006). The transition study: A look at youth and adults with cerebral palsy, spina bifida, and acquired brain injury. Physical & Occupational Therapy in Pediatrics, 26(4), 25-45.

Transition Literature Reviews:

• Betz, C.L. (2004). Transition of adolescents with special health care needs: Review and analysis of the literature.  Issues in Comprehensive Pediatric Nursing, 27, 179-241.
• Stewart, D., Stavness, C., King, G., Antle, B., and Law, M. (2006). A critical appraisal of literature reviews about the transition to adulthood for youth with disabilities. Physical and Occupational Therapy in Pediatrics, 26(4), 5-24.
• Wedgwood, N. (November 2007). The transition of adolescents with chronic health conditions from paediatric to adult services. Literature Overview, University of Sydney, On behalf of the ARACY Collaboration for: Achieving better health outcomes for youth with chronic health conditions: A Pan Disciplinary Approach.
• While, A., Forbes, A., Ullman, F. R., Lewis, S., Mathes, L., & Griffiths, P. (2004). Good practices that address continuity during transition from child to adult care: Synthesis of the evidence. Child: Care, Health, & Development, 30, 439-452.

Links:

• DOOR 2 Adulthood – an Ontario-based resource on transition related services
• Best Practice Guidelines for Transition to Adulthood for Youth with Disabilities in Ontario: An Evidence-based Approach
• Transition to adult care for youth with special health care needs – Position Statement from the Canadian Pediatric Society
• Adolescent Health Transition Project from University of Washington, Seattle
• Health Care Transitions from University of Florida
• BC Children’s Hospital – Tool Box for Transition including Your Plan-It and Getting On-Trac
• Royal Children’s Hospital Melbourne – Transition to Adult Health Services
• Sick Kids Hospital – Good 2 Go Transition Program

Links for Family Facilitator Info:

• Lucile Packard Children's Hospital at Stanford in California involve families in numerous ways as mentors, as educators and as policy partners.
• Beach Centre on Disability at the University of Kansas
• Family Voices
• Making It Work: When Families That Represent A Service Population Become Employees (PDF: 581 KB)

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