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A teaching hospital fully affiliated with the University of Toronto
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Programs & Services
Transitions Conference 5
Partnerships: Together for LIFE
May 31 and June 1, 2010
Bloorview Kids Rehab and CNIB
Toronto, Ontario, Canada
Presenter Info
Monday, May 31, 2010
7:00 a.m. Poster set up
8:00 a.m. Registration and continental breakfast
9:00 – 10:00 a.m. Opening Address – To Be Announced
10:00 – 10:30 a.m. Break to attend poster presentations
Session Code: MM1
10:30 – 11:30 a.m.
‘SYSTEMS THINKING’ TO IMPROVE HEALTH-AND PARTICIPATION-RELATED BEHAVIOURS OF YOUTH WITH DISABILITIES
Presented by: Yani Hamdani & Arif Jetha – Dalla Lana School of Public Health, University of Toronto
The purpose of this workshop is to engage participants in examination of ‘systems thinking’ perspectives, such as systems dynamics and complexity theory, for understanding the health and participation-related behaviours of youth with disabilities. The implications of these perspectives for practice and research regarding transition to adulthood will be discussed.
60 Minutes
Session Code: MM2
PARTNERING FOR PERFORMANCE IMPROVEMENT IN TRANSITION
Presented by: Carol Nelson - Gillette Children’s Specialty Healthcare/Gillette Lifetime Specialty Healthcare, St. Paul, Minnesota
This presentation will describe Gillette Lifetime Specialty Healthcare, a clinic for teens and adults, in terms of its multidisciplinary, integrated model as well as lessons learned during eight years of operation. A discussion about the tools developed to increase skill building in self management will encourage active participation.
60 Minutes
Session Code: MM3
PASSING THE BATON
Presented by: Anne W Grant – Children’s Hospital of Philadelphia, Pennsylvania
This presentation will provide an overview of the transition program developed through a joint initiative between the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania. The program was created for adolescents with chronic gastrointestinal diseases who are of the age to transition to adult care but reluctant to leave the pediatric providers.
60 Minutes
11:30 – 11:45 a.m. |
Break |
Session Code: MM4
11:45 a.m. – 12:15 p.m.
CRUISE CONTROL – A CHRONIC DISEASE SELF-MANAGEMENT RESOURCE FOR YOUTH/YOUNG ADULTS WITH DIABETES
Presented by: Joan Versnel - School of Occupational Therapy, Dalhousie University, Halifax, Nova Scotia
This presentation describes the development of a partnership among pediatric and adult service providers and researchers to develop an internet-based self management resource for youth and young/adults with diabetes.
30 Minutes
Session Code: MM5
ASSISTIVE TECHNOLOGY FOR COGNITION & LEARNING: HELPING STUDENTS TRANSITION THROUGH SCHOOL AND INTO INDEPENDENT LIVING
Presented by: Catherine Aro, Chantal Doerig, Marie Hren, Ann George & Henry Wong – Neuro-Rehab Services Inc., Concord, Ontario
This interactive workshop will focus on the use of assistive technology for cognition and learning, in managing school and community transitions post TBI. The presentation will include evidence-based research, case studies and demonstrations of various assistive technologies to promote functional independence and quality of life.
30 Minutes
Session Code: MM6
PREDICTORS OF SELF-WORTH IN EARLY ADOLESCENCE
Presented by: Sharmila Vaz – Centre for Research into Disability and Society, Curtin University of Technology, Perth, Western Australia
The study presents the personal and contextual factors that influence school belonging in a sample of mainstream early adolescents as they transition from primary to secondary school. The value of coping and social skills, motivational orientations, parental involvement in school and the classroom environment are highlighted.
30 Minutes
12:15 – 1:15 p.m. |
Lunch – attend poster presentations |
Session Code: MA1
1:15 – 2:15 p.m.
PREPARATIONS, JOURNEYS AND LANDINGS: BEST JOURNEY TO ADULT LIFE MODEL AND BEST PRACTICE GUIDELINES
Presented by: Debra Stewart - School of Rehabilitation Science, McMaster University, Hamilton, Ontario
This workshop will explore a model and best practice guidelines for transition which were developed with input from families, youth, and service providers. Recommendations are provided for youth, families, service providers and community. Guidelines are also discussed within a framework of preparations, journey and landings.
60 Minutes
Session Code: MA2
PANEL PRESENTATION ON PEEL REGION’S TRANSITION ADVISORY COMMITTEE
Presented by: Heidie Kazman, Carol Jones, Jon Greenaway, Shelley Higgerty and Lydia Bannister – Peel District School Board, Dufferin Peel Catholic District School Board, ErinoakKids, Region of Peel and Brampton Caledon Community Living
This presentation will provide an overview of the collaborative partnership and cross-sector linkages of over 12 agencies in the Peel Region that promote successful transition planning for high school students with developmental disabilities.
60 Minutes
Sessin Code: MA3
GROWING UP READY GOES GLOBAL
Presented by: Sander Hilberink, Carie Gall, Isabel Rute and Geraldine Cullen Dean – Erasmus Medical Centre, Rotterdam, The Netherlands, Bloorview Kids Rehab, Lisbon Portugal, Hospital for Sick Children
Moderated by Helen Healy
An international panel shares their experience adapting Growing up Ready, which promotes acquisition of skills for adult life, to the realities of different diagnostic groups, developmental stages and cultures.
60 Minutes
2:15 – 2:30 p.m. BREAK
Session Code: MA4
2:30 – 4:00 p.m.
LIFESPAN 2010: THEN…NOW…NEXT
Presented by: Joanne Maxwell, Bronwen Moore, Carie Gall, Dolly Menna-Dack, Julie Osbelt, Bev Solomon, Shauna Kingsnorth, Sally Lindsey, Andrea Lauzon and Irina Tysbina – Bloorview Kids Rehab and Toronto Rehab Institute
The LIFEspan Service is an innovative partnership model of care that transitions young adults to an adult care partner and continues to follow them through their adult lives. This presentation will describe the LIFEspan model and employ a case study to illustrate the model in practice. Preliminary results of a qualitative study will showcase the experiences of the inter-professional pediatric and adult team during the first full year of the LIFEspan service. Successes and challenges identified in implementing this partnership program will be discussed.
90 Minutes
Session Code: MA5
TRANSITION NETWORK: ACTIVITIES AND EVALUATION OF IMPLEMENTATION OF LIFESPAN CARE
Presented by: S.R. Hilberink, W.M.A. van der Slot, S. Jedeloo, J. van Meeteren, D.J.H.G. Wiegerink and M.E. Roebroeck – Erasmus Medical Centre Rotterdam, Rehabilitation Medicine, Rijndam Rehabilitation Centre Rotterdam, Centre of Excellence Transitions in Care, Rotterdam University, The Netherlands
This presentation shows the activities of a Dutch transition network (TransitieNet) – a network for rehabilitation professionals – to stimulate and support transition care in the Netherlands.
30 Minutes
INCREASING PARTICIPATION IN EARLY WORK EXPERIENCES TO HELP YOUTH GET READY FOR ADULT LIFE
Presented by: Carolyn McDougall, R. Sanford, E Marshall and S. Rudge - Bloorview Kids Rehab, Toronto District School Board & JobStart
Can youth with disabilities close the employment skills gap? Learn why and how three Toronto agencies are trying to increase participation in early work experience opportunities (school-based, seasonal and part-time work) to promote teens’ skill development and self-determination.
60 Minutes
Session Code: MA6
GETTING READY FOR ADULT CARDIAC CARE: A PEDIATRIC AND ADULT COLLABORATION IN ACTION
Presented by: Sandra Aiello – The Hospital For Sick Children and
Adrienne Kovacs – University Health Network
This presentation will describe the development of a collaborative partnership called the Transition Task Force in order to meet the challenge of cardiac patients transitioning from pediatric to adult care.
30 Minutes
CREATIVE APPROACHES TO IMPROVING TRANSITION SERVICES AT A TERITARY INSTITUTION
Presented by: Parag Shah – Children’s Memorial Hospital, Chicago, Illinois
Children with chronic disease are now thriving into adolescence and young adulthood as never before, creating new challenges and opportunities for providers who must prepare them to transition to the adult health care setting. This podium will describe a unique response to this challenge by a tertiary care children’s hospital.
30 Minutes
YOUTH KEEPING IT TOGETHER: LESSONS LEARNED FROM YOUTH ABOUT THE TRANSITION TO ADULTHOOD
Presented by: Matt Freeman – School of Rehabilitation Science, McMaster University, Hamilton, Ontario
The YouthKIT is a tool for youth to give, get and organize their own information along the journey of transitioning to adulthood. This presentation summarizes relevant findings from YouthKIT research with different populations and settings that provides current youth perspectives on this important transition.
30 minutes
Tuesday June 1, 2010:
7:00 a.m. Poster set up
8:00 a.m. Registration and continental breakfast
8:30 – 9:30 a.m. Conference Remarks
9:30 – 10:00 a.m. Break to Attend Poster Presentations
Session Code: TM1
10:00 – 11:30 a.m.
GOOD2GO TRANSITION PROGRAM
The Hospital For Sick Children
This interactive workshop will provide participants with an overview of the Good 2 Go Transition Program.
HELPING PROGRAMS PROMOTE HEALTHYTRANSITIONS FROM PEDIATRIC TO ADULT HEALTH CARE
Presented by: Andrea Wheat
Participants will have the opportunity to engage in discussion and explore strategies for implementation with individuals who have used the transition tools through a panel discussion.
THE DEVELOPMENT OF AN ADOLESCENT RENAL TRANSITION CLINIC
Presented by: Angela Williams
This presentation will describe the processes and outcomes of an adolescent renal transplant transition clinic, highlighting the development and success of two clinics held in 2009, involving a partnership between the Sick Kids and Toronto General renal transplant teams and Sick Kids Good 2 Go Team.
LUPUS TRANSITION IS A COLLABORATIVE AFFAIR
Presented by: Anne Rogers
A presentation centering on the unique approach that the Sick Kids Lupus Clinic team and the Good 2 Go Transition Program have taken, in collaboration with the Adult Lupus Clinic team at Toronto Western Hospital, to help alleviate the stress, worry and fear associated with the transition from pediatric to adult health care.
CROSSING THE STREET: A COLLABORATIVE APPROACH TO TRANSITION
Presented by: Kathy Martin
This presentation will describe the collaborative transition program involving the Organ Transplant Programs at the Hospital for Sick Children and Toronto General Hospital. This multifaceted program includes a Transition Information Day for adolescents and their families, which is presented jointly by both institutions.
90 Minutes
Session Code: TM2
MEASUREMENT OF MEDICAL AUTONOMY AND TRANSITION READINESS AMONG ADOLESCENTS WITH CHRONIC HEALTH CONDITIONS
Presented by: Tricia Williams – Hospital for Sick Children
This presentation addresses the measurement of medical autonomy among a small sample of adolescents with chronic health conditions from Calgary, Alberta. Results demonstrated that youth report achieving many self management skills believed to be associated with medical autonomy. Limitations of this study and future directions are discussed.
30 Minutes
BUILDING BRIDGES TO ADULT CARE THROUGH COLLABORATION: A NEW TRANSITION MODEL OF CARE FOR YOUNG PEOPLE WITH SPINA BIFIDA
Presented by: Lynne Brodie – The Greater Metropolitan Clinical Taskforce, New South Wales, Australia
This presentation outlines the development and implementation of a new model of adult care for young people with Spina Bifida transitioning from pediatric services throughout New South Wales, Australia. This service commenced in August 2009 and demonstrates the strength in forming partnerships to develop a united approach to service development.
30 Minutes
PARTICIPATION OUTCOME MEASURES IN CHRONIC DISEASE SELF-MANAGEMENT PROGRAMS FOR YOUTH/YOUNG ADULTS
Presented by: Joan Versnel – School of Occupational Therapy, Dalhousie University, Halifax, Ontario
This presentation describes the findings of an integrative literature review of participation outcome measures used in chronic disease self-management programs for youth/young adults with chronic illness or disability.
30 Minutes
Session Code: TM3
EVOLVING THROUGH THE YEARS, SECRETS TO A LONG STANDING COMMUNITY PARTNERSHIP
Presented by: Julie Osbelt, Lori Wood & Abbey Royle – Bloorview Kids Rehab & Ontario March of Dimes, Toronto, Ontario
After 10 years together offering life skills and transition programs for youth with disabilities, Bloorview Kids Rehab and March of Dimes share the means behind the longevity of their partnership. This presentation will highlight partnership guiding principles and initiatives, addressing successes and lessons learned.
30 Minutes
SUMMER IN THE CITY: A PUBLIC TRANSIT PROGRAM FOR YOUTH WITH A DISABILITY
Presented by: Sarah Keenan and Natalie Timbrell – Bloorview Kids Rehab, Toronto, Ontario
Summer in the City is an eight-day program that increases independence and community participation for youth with disabilities by preparing them for travelling on public transit. Participants in this 30 minute workshop will learn about Summer in the City and how to implement a similar program with their clients.
30 Minutes
EDUCATIONAL TRANSITIONS OF DISABLED INDIVIDUALS
Presented by: David Ward and Warren Rupnarain, Toronto, Ontario
The presentation will focus on the transition from elementary school to high school and from high school to university for students with disabilities. We will illustrate the two transition periods highlighting participation, illustrating experiences around inclusion and education through dramatization.
30 Minutes
11:30 – 12:00 |
Break to attend poster presentations |
12:00 – 1:30 p.m. |
Lunch and Conference presentation |
Session Code TA1
1:30 – 2:30 p.m.
BUILDING MEANINGFUL PARTNERSHIPS AMONG PEDIATRIC AND ADULT PROVIDERS CARING FOR YOUNG ADULTS WITH CYSTIC FIBROSIS
Presented by: John Reiss, Rebecca Brown and Susan Horky – Department of Pediatrics, University of Florida, Gainesville, Florida
Hear how partnerships among pediatric and adult cystic fibrosis providers are established and supported by working together on a year book for patients “graduating from peds”, an orientation video to adult clinic, pre-transfer planning meetings, post-transfer consultation and inter-professional support.
60 Minutes
Session Code: TA2
THE POWER OF COMMUNITY HEALTHCARE PARTNERSHIPS: PROMOTING TRANSFORMATIVE GROWTH
Presented by: Megan Henze – Gage Transition to Independent Living, West Park Healthcare Centre, Toronto, Ontario
A firsthand account from a client will illustrate the power of a successful partnership between ErinoakKids and the Gage Transition to Independent Living. Service providers will describe the process involved in this partnership and provide tools to create partnerships between pediatric and adult services.
60 Minutes
Session Code: TA3
PROMOTING INDEPENDENCE – Part 1
Independent Living Programs provide youth with opportunities to develop their autonomy, practice community living skills, share personal experiences and learn how to direct their own care by interacting with personal support workers.
This interactive 2-part workshop will introduce you to a variety of programs which allow participants to practice the skills they need for independent living.
You will hear from:
The Independence Program
Presented by: Kimberlea Jones-Galley – Bloorview Kids Rehab
Recreation Opportunities for Youth in Transition
Presented by: Donna Mackay – Ontario March of Dimes
Moving On…Teen Independent Living Program
Presented by: Andrea Morrison - Hamilton Health Sciences – Children’s Developmental Rehabilitation Program
En Route Camp
Presented by: Emily Lecker and Michele Gardiner – MAB Mackay Rehabilitation Centre, Montreal, Quebec
Bright Futures - A Transition Camp
Presented by: Edie Roderick & Janet Padley – Children’s Mercy Hospital/The Rehabilitation Institute, Kansas City, Missouri
60 Minutes
2:30 – 2:45 p.m. |
BREAK |
Session Code: TA3
PROMOTING INDEPENDENCE - Part 2
Children's Treatment Centers in Ontario have collaborated with one another to develop and evaluate their unique Independent Living Programs for adolescents (14 to 21 years of age) with physical disabilities.
The objective of the second part of this workshop is to discuss details of the networking process aimed at building capacity undertaken in Ontario The merits of the collaborative approach and strategies and successes in partnering with community agencies will be highlighted. In addition, we will review common elements in program planning, content, philosophy and evaluation of all of the programs. We will examine how these programs optimize performance and reflect best practices for addressing the needs of adolescents with physical disabilities. Finally, we will explore how we can continue to communicate beyond the conference.
60 Minutes
2:30 – 2:45 p.m. |
Break |
Session Code: TA4
2:45 – 3:45 p.m.
PREPARING FOR AND CELEBRATING YOUR TRANSITION
Presented by: Cory Ellen Nourie – Alfred I. DuPont Hospital for Children/Nemours, Wilmington, Delaware
Transition should be a time of celebration as young adults move into adulthood. With planning and preparation, it can be! This interactive workshop will offer ways to ready yourself for the big move, while celebrating this milestone.
60 Minutes
Session Code: TA5
FROM THE PASSENGERS SEAT TO THE DRIVER’S SEAT, BUCKLING UP USING A CUSTOMIZED ACCOMMODATION PROFILE TOOLBELT
Presented by: Maureen Wood – Thames Valley Children’s Centre
And Tom McLeod London District Catholic School Board, London, Ontario
This presentation will discuss the application of a student friendly tool to help them to choose to disclose relevant information on their personal strengths and their needs for accommodations/modifications in a typical 24 hour day. This document can be used in the transition to post secondary education, employment, leisure and or volunteer life roles in their new adult world.
60 Minutes
3:45 – 4:00 p.m. Closure presentation