Bloom magazine: Helping Kids With Disabilities Grow
art works
The power of body language
‘It’s a rich, unmined environment’

 

 

 

 

 

 

 

 

 

 

Scientists, mother, teenager and government minister
What a parent says

“Max is 15-years-old and trapped in a body that doesn’t reliably or consistently work,” Karen Castelane (second from left) told Ontario Minister of Research and Innovation John Wilkinson (far right). Also present at the funding announcement were Bloorview PhD student Stefanie Blain (left), client Max Weinryb, centre, and scientist Tom Chau (second from right).

“The body-talk research is the first and the closest we’ve come to unlocking the door to Max’s world: his needs, feelings, opinions, observations, learning and independence,” Karen said. “What parent wouldn’t want to hear their child say ‘thank you,’ ‘I’m having fun’ or just ‘I love you?’”.

Scientist tests body signals of teenager
Photo by William Suarez.
 
Bloorview biomedical engineer Tom Chau received an Ontario Early Researcher Award this fall for his body-talk research, which aims to give children who are unable to speak or move a way to express themselves through subtle body processes like breathing pattern and heart rate.

The Early Researcher Awards help gifted Ontario researchers build their research teams with funding of $140,000. “It will enable us to continue to attract and retain the most passionate graduate students and post-doctoral fellows from around the world,” Tom says.

One of those is University of Toronto PhD student Stefanie Blain. We profile her work in Tom’s lab, below.

Who: Stefanie Blain, third year PhD biomedical engineering student.

What: Finding a way to unlock the world of communication and control for children and adults who have no speech or movement. “They can’t talk to people or control their environment — essentially they’re locked in to their own bodies,” Stefanie says.

Where: The Bloorview Research Institute. “It allows me to combine cutting-edge technologies and engineering skills to make a difference in the lives of children,” Stefanie says. “With Bloorview’s research institute and hospital under one roof, there’s a unique concentration of great minds in rehabilitation.”

When: Stefanie came to Bloorview as an undergraduate in 2003. “A PhD is a marathon,” she says. “If you don’t have a reason to keep going, you can get burnt out. The children at Bloorview are my reason.”

Why: “Children who are ‘locked in’ don’t have any way to express their identity,” Stefanie says. “They can’t make the most basic choices. If we can find a way for these children to convey their thoughts and intentions, what’s possible will only be limited by their imaginations.”

How: Stefanie is training a computer program to decipher subtle body signals — such as breathing pattern, heart rate and skin temperature — then translate them into electronic speech or computer commands. “It’s a rich, unmined environment. If we can give children the ability to say ‘yes’ or ‘no,’ to scan letters, to select buttons that control a computer or television, it will open a new world for them.”end of article